Privacy Policy

Who is responsible for your personal data?

The Patient Engagement Resource Centre is a website by EATRIS. EATRIS is an ERIC (European Research Infrastructure Consortium) established with the European Commission Implementing Decision of 7th November 2013 (2013/640/EU), its goal is managing translational research programs and improving translational biomedical research by developing a European research infrastructure consisting of key preclinical and clinical facilities, and translational expertise from research institutions throughout Europe.

Our registered address is at De Boelelaan 1118, 1081 HZ Amsterdam, The Netherlands.

We are the data controller of the data which we collect from you, and as such we control the ways your personal data are collected and the purposes for which your personal data are used.

Personal data we collect about you

Your privacy comes first, and we aim at the highest standard for data privacy introduced by GDPR. We collect, process and use your personal data through our website when you complete the contact form.

We only collect basic personal data about you which does not include any special types of information or sensitive data. This however includes personal data such as name and email.

Why we need your data and what we do with your data?

We can only collect and use your personal data if we have a proper reason for doing so. According to the law, we can only use your data for one or more of these reasons:

• To fulfil a contract we have with you, or
• If we have a legal duty to use your data for a particular reason, or 

• When you consent to it, or
• When it is in our legitimate interests;

We need to know your basic personal data in order to provide you with the information you request from us.

Sharing your data

We do not share your data with third parties for commercial and marketing purposes. Your personal data may be only used and shared in the context of specific scientific activities and research collaboration opportunities.

Certain personal information may also be shared with our third-party service providers (such as web hosting etc.) only for the purpose of realizing these services. As far as these third parties have access to personal data in order to execute these processing activities, we have taken required organizational and contractual measures to ensure that your personal data is processed exclusively for the purposes mentioned above.

We may share your personal data with the competent authorities, and only if we are required to do so by law.

How long we keep your data

We keep your data only for as long as we need it. How long we need data depends on what we are using it for, whether that is to provide services to you, for our own legitimate interests (described above) or so that we can comply with the law.

Personal data we collect from you, in order to provide our services, will be kept for maximum 5 years before being deleted. We will actively review the information we hold and when there is no legal or business need for us to hold it, we will delete it securely.

What are your rights

Under GDPR you are entitled to see copies of all personal data held by us and to amend, correct, delete or export such data. You can also limit, restrict or object to the processing of your data. If at any point you want to view your data, or exercise any of the above described rights, you can make a request to:

De Boelelaan 1118 1081 HZ Amsterdam The Netherlands

or by e-mail at
When you get in touch, we will come back to you as soon as possible and within a maximum of one month. We may also ask you to verify your identity before we provide any information to you.


If you wish to raise a complaint on how we have handled your personal data, you can contact us to have the matter investigated at

If you are not satisfied with our response or believe we are processing your personal data not in accordance with the law, you have the right to lodge a complaint with the supervisory authority which is responsible for the protection of personal data in the country where you live or work, or in which you think a breach of data protection laws might have taken place. In the Netherlands you can contact the Autoriteit Persoonsgegevens by telephone on (+31) – (0)70 – 888 85 00 or by writing to the Autoriteit Persoonsgegevens at Postbus 93374, 2509 AJ DEN HAAG.

Use of cookies

Patient Engagement Resource Centre website is using cookies. You can easily accept or reject the cookies on Patient Engagement Resource Centre site by choosing one of the following: I accept cookies/ I reject cookies.

What are cookies?

Cookies are short text files placed on your device through the web browser you use. They collect standard information such as the browser type, browser language, your Internet Protocol (IP) address and your interaction with the website.

This information is anonymous. In practice, the information gathered is not capable of directly identifying you or tracking your web-browsing activities outside the domain of The Patient Engagement Resource Centre. Also, cookies are not able of infecting your device with viruses or installing unwanted or security-threatening software.

How do we use cookies?

The data, when collected, is automatically transferred to Google Analytics. Google Analytics performs web analysis and helps us monitor the behaviour of visitors and how they engage with our services or applications. By visiting and using our applications on the Patient Engagement Resource Centre website, you consent to the further processing of the data created and recorded by Google Analytics. To receive more insights about how you can control the information collected by Google you can visit or any other link that Google may periodically provide.

How long cookies persist on your browser?

The period that cookies remain on your device may vary depending on their type. Transient cookies (including session cookies storing the session-IDs and offering the functionality of recognising your device when returning to the website) are automatically removed when you exit your web browser. Persistent cookies are usually not automatically removed when you exit your web browser but after a definite period that may vary depending on their type. Persistent cookies can always be manually removed from your web browser.

How do I control/reject cookies?

You can control and/or delete cookies by deleting all cookies that are already on your computer or disabling the use of cookies from your browsing application for this website and others. In that case, please be aware that possibly you may not be able to access the same functionalities for this website.

Links to other websites

The Patient Engagement Resource Centre website contains links to other websites. When you follow the links to such other websites from here, we advise you to be aware of and read their privacy policy. EATRIS is not responsible for the privacy practices of such other websites.

Embedded content from other websites

In some places, content from other websites is embedded in The Patient Engagement Resource Centre website (i.e. You Tube videos). Embedded content from other websites behaves in exactly the same way as if the visitor has visited the other website so you may wish to consult the policies of these third-party websites for information regarding their use of cookies.

Changes to our Privacy Policy

From time to time we may update our Privacy Policy. If we make any substantial changes, these will be posted on the Patient Engagement Resource Centre Privacy Policy page so please check it on a regular basis.

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