This section of the website “A practical guide to patient and public involvement in lab-based research” offers a series of reflective questions to consider during the planning period. (Source: Parkinson’s UK, Alzheimer’s Society and NIHR)

This document addresses the considerations for identifying appropriate participants when planning a patient engagement activity, and the associated skills to help match the right person to the right activity. (Source: PARADIGM Project)

This section of the PPI Ignite network offers a set of questions for researchers to consider when preparing and planning engagement with potential public and patient involvement partners. (Source: University College Dublin)

The James Lind Alliance Guidebook is a step-by-step guide to establishing and managing a Priority Setting Partnership (PSP) and the principles behind it. In the “Practical Tools” section you will find templates and documents that complement this guidebook. (Source: JLA)

This page links to guides and practical advice on payment and non-monetary methods for recognising the time, skills and expertise provided by members of the public. Although this tool is specific to the UK, its guiding principles can be applied elsewhere. (Source: NIHR- INVOLVE)

This is a guide for patients, carers and members of the public thinking about getting actively involved in research and being offered expenses and/ or payment for their involvement. Although this tool is specific to the UK, its guiding principles can be applied elsewhere. (Source: NIHR)

This guide is addressed to researchers who need to cost PI activities at any stage of the research process, this includes anyone in a professional role involved in costing PI. Although this tool is specific to the UK , its guiding principles can be applied elsewhere. (Source: NIHR)

This Guidance is aimed at organisations that pay public contributors as part of their involvement of members of the public in research, as well as for researchers and research staff. Although this tool is specific to the UK , its guiding principles can be applied elsewhere. (Source: NIHR)

This toolkit provides resources to support researchers to better understand how to embed equality, diversity and inclusion in the research design. Although this tool is specific to the UK, its guiding principles can be applied elsewhere. (Source: NIHR)

Thise set of material, including guidance, educational scenarios and tools, explores how to support patients to make informed decisions before the engagement and help engaging stakeholders understand the consequences that the act of engagement might have on patients during multi-stakeholder interactions in medicines development. (Source: PARADIGM Project)

This set of documents, including useful information and mandatory items for the planning and establishment of a Priority Setting Partnership (PSP) complements the James Lind Alliance Guidebook. (Source: JLA)

This planning tool ,designed to help consider theoretical challenges for implementing public and patient involvement (PPI), is aimed to assist researchers and PPI contributors to make a strategic, considered plan for involvement throughout all stages of research and can be used iteratively as the research progresses. (Source: University College Dublin)

This checklist, including actions and responsibilities related to general planning, respect, accessibility, representativeness, transparency aims to help organisers in the planning of patient engagement activities. (Source: PARADIGM Project)

This checklist, to be used during pre-engagement planning of patient engagement activities, is a practical tool designed to help individuals responsible for coordinating and planning patient engagement activities consider specific patient needs for travel, meeting venues, accommodation and associated elements. (Source: PARADIGM Project)

The PPI Cost Calculator is a practical tool to help planning the public and patient involvement budget. (Source: University College Dublin)

This tool helps plan the public and patient involvement budget, and provides practical advice on how to budget for involving patients, carers and the public in research at any stage of the research process. Although this tool is specific for the UK, its guiding principles can be used elsewhere. (Source: NIHR-INVOLVE)

This section of the Research Impact toolkit provides a canvas for planning impact, breaking impact down into its component parts and helping planning, from identifying collaborators to writing impact sections in funding proposals.(Source: University College Dublin)

The EUPATIConnect is a place where both EUPATI Patient Experts (+200 patients who went through a training programme on research and development) and researchers can connect, to create mutually beneficial opportunities and to enhance the future of patient engagement. (Source: EUPATI)

This link describes some common methods to consider when partnering with public and patient involvement contributors. (Source: University College Dublin)

This section of the Practical Guide to Patient and Public Involvement in lab-based research, provides advice about what to do during the public and patient involvement activity. (Source: Parkinson’s UK, Alzheimer’s Society and NIHR)

This online decision support tool is intended to enable researchers, policy-makers and others wanting to conduct inclusive research, to find the method best suited for their specific project needs, covering a wide variety of engagement and involvement methods suited to local, national and transnational research projects. (Source: Engage 2020 Project)

This guidance, together with the checklist and template that complement it, can be used by organisations for a more effective and timely planning, reporting and disseminating of information of their patient engagement activities. (Source: PARADIGM Project)

This tool is a guidance for reporting patient and public involvement in health and social care research, aiming to improve the quality, transparency, and consistency of the international patient and public involvement. (Source: Equator Network)

This toolkit provides resources and tools to help capture, communicate and monitor the research impact. (Source: University College Dublin)

This tool provides guidance on the evaluation process of Public and Patient Involvement, considering what has to be evaluated, the key principles and a practical Assessment tool. (Source: University College Dublin)

This tool helps to assess the level and quality of patient engagement in an ongoing or completed project and to identify areas for improvement in future projects. (Source: Patient Focused Medicine Development)

This tool provides a map for monitoring and evaluation of patient engagement across multiple decision-points in medicines R&D, including 87 metrics organized across four key evaluation components: Input metrics , Activities/process, Learning & Change metrics and Impact metrics. (Source: PARADIGM Project)